Version 2 Guide to school policy for young people with sickle cell disease

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Guide for Schools Cover V2

Content Author:
Professor Simon Dyson (and research team)

Healthcare professionals, teachers, policy makers, researchers

OER Features:

Guide for schools V2 Word Document: SCOOTEROER112a_Simon Dyson Guide for Schools_V2_June 2016

Guide for Schools V2 PDF: SCOOTEROER112b_Simon Dyson Guide for Schools_V2_June 2016


OER Description:

The most popular resource by far on this website is Professor Dyson’s ‘Guide for Schools’, and this page provides an updated version of this.  Details of the earlier version can be found here – – and this resource has been translated into several other languages.

The reason for this second edition is change to UK law with the introduction of the Children and Families Act of 2014. This requires schools to make provision for young people with conditions such as sickle cell disease, and the guide further supports this.

We hope this guide is useful and it continues to lead improvements in the way that young people with SCD are integrated into school.

This second blog post provides more background details of the second version of this guide.


Sickle cell disorders guide for schools

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Content Author:
Professor Simon Dyson

Healthcare professionals, school professionals, policy makers

OER Features:
Video – YouTube

PDF – SCED_HAUSA_2014 Slideshare

Slides via SlideShare – Sickle cell disease a guide for schools

OER Description:

The ‘Schools Guide‘ was the result of research by Professor Simon Dyson and colleagues, and assists teachers and policy makers in supporting children with sickle cell anaemia and thalassaemia in schools. The guide is one of this projects most popular open educational resources (OER), and through Simon’s hard work has been translated into several Nigerian languages, with others planned.

This is a lovely video outlining the work, and the bundle of resources contains downloadable slides and documents to support further understanding of this area.

Sickle cell patient hospital experiences – by James Elander

James Elander Research

Image: Patient experiences in hospital by Professor James Elander
Creative Commons BY SA.
Professor James Elander

Undergraduate social sciences and healthcare, postgraduate, healthcare professionals.

OER Features:

Narrated presentation: Patient experience of pain management.

Narrated presentation: Patient experiences of pain killers and risk of addiction.

Narrated presentation: Hospital staff perceptions of patients’ pain.

OER Description:

These open educational resources incorporate a series of 3 narrated presentations, presented by Professor James Elander from Derby University. They provide a fascinating and essential insight into the area of pain management, both from the experience of the sickle patient and the perceptions of hospital staff. The resources describe some contentious areas of the use of pain killers and perceptions of professional staff.



Staff training for resource creation by Julie Lowe

How To - by Julie Lowe

Julie Lowe

OER community, eLearning community

OER Features:

Camtasia Screen Capture Software

How to Podcast

How to use Articulate Presenter Part 1

How to use Articulate Presenter Part 2

How to use Articulate Presenter Part 3


OER Description:

There are many solutions for producing teaching resources and placing them on the internet. Here are a series of instructional videos produced by Julie Lowe a learning technologist (now at the University of Surrey) that take you through how to use some popular software for producing open educational resources. Here we look at screen capture / screen grab software, podcasting and how to add audio narrations to PowerPoint presentations.

Camtasia screen capture software allows you to display the contents of your PC screen and to record a narration. The end files produce really effective teaching resources very quickly. There are alternative free solutions available for example Jing and Screenr.

Podcasting involves releasing audio files in episodes or over time. There are many free software solutions for editing audio and online services to allow you to distribute your podcasts. This tutorial is a good step-through guide for academics and non-technical developers of open educational resources on how to podcast.

Articulate Presenter is software that works with Microsoft PowerPoint to allow you to record a narration over slides and publish them as a “swf” file with interactive video controls, thus forming a more complete usable learning resource.

You can simply record a narration in PowerPoint directly and publish it as a PPT file, but this won’t give the user any video controls to stop and start for example. Articulate can also just publish your work as an MP3 for use as a podcast. The downside is that the “swf” files are not viewable in the iPAD and other Apple Products.


Staff creating open educational resources

OER Creation Pipeline

OER Pipeline by Viv Rolfe. Creative Commons BY SA

Dr Vivien Rolfe

OER community

OER Features:

Open Educational Resource Production Pipeline

Copyright Permissions Form

Print / Audio / Video Production Form

Quick Specification Form

Full Specification Form


OER Description:

These are a series of OERs on how to produce good quality learning resources for release as open content, and they include a flow diagram of everything that you need to consider from start to finish.

The flow diagram helps you consider copyright and technical aspects of working with new and existing content, and how to work with material that may belong to external parties and third parties.

The resources include a number of JISC forms that you will need to complete to gain copyright and recording permission and also very useful resource creation checklists from the RLO CETL (Nottingham, Cambridge and London Metropolitan University).

Further Reading:

JISC and HEA OER InfoKit (2012). Available at:

This website provides everything you need to know about OER including managerial, legal and technical aspects of using other people’s OERs and releasing your own onto the internet.