Sickle cell ‘Schools Guide’ Nigerian English translation

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Nigerian English

Content Author:
Professor Simon Dyson

Healthcare professionals, school professionals, policy makers

OER Features:
Schools Guide translation into Nigerian English
Word Document – SCOOTER88a_School_Policy_Nigerian_English
PDF File – SCOOTER88b_School_Policy_Nigerian_English

OER Description:

This version of the popular ‘Guide to School Policy‘ has been translated into Nigerian English to benefit wider groups of teachers and policy makers supporting school children with sickle cell anaemia and thalassaemia. The following people were involved in this new version of the school policy guide, and we would like to thank them for their contribution:


• Bola Ojo,
• Naomi Maiguwa, • Jonah Lah
• Dr Baba Inusa
• Comfort Okolo
• Elizabeth Anionwu

We would like to thank the following for their critical appraisal of the original UK draft of this policy guide:

• Professor Elizabeth Anionwu, CBE, Emeritus Professor of Nursing, University of West London. • Suzi Crawford, Specialist Nurse Counsellor, Soho Health Centre, Birmingham.
• Dr Paul Telfer, Senior Lecturer in Haematology at Queen Mary, University of London , and Honorary Consultant Haematologist at St Bartholomew’s and The Royal London NHS Trusts.

Guide for schools to help learners with sickle cell

Guide for schools







Image: School Health and Safety Guide by Professor Simon Dyson
Creative Commons BY-SA

Professor Simon Dyson

Undergraduate social sciences and healthcare, postgraduate, education and healthcare professionals.

OER Features:

Funding report: Education of young people with sickle cell disease

Editable guide for schools 

OER Description:

These open educational resources are perhaps some of our most important. They are the result of a research project funded by the UK Economic & Social Research Council and conducted between De Montfort University, University of York and Loughborough University. The first report provides some essential background information to sickle cell disease, which is a complex condition with symptoms ranging from stroke, silent stroke, chronic pain and acute painful crises.

This research project explored how young people are treated in schools, and as a result, a help guide has been produced which many schools are now using and have adapted to provide support and better care of sickle suffers in their education setting.

Lecture series – educational experiences of young people with sickle cell

Image: Sickle cell and educational experience by Professor Simon Dyson
Creative Commons BY-SA.

Professor Simon Dyson

Undergraduate social sciences and healthcare, postgraduate, education and healthcare professionals.

OER Features:

Narrated presentation: Literature review of the educational experiences of young people with sickle cell.

Narrated presentation: Local authorities and the education of young people with sickle cell.

Reported experiences of young people with sickle cell.

Disclosure and young people with sickle cell.

Further experiences of young people at school with sickle cell.

Summary presentation.


OER Description:

These open educational resources incorporate a series of 6 narrated presentations, presented by Professor Simon Dyson of De Montfort University. The talks explore young people’s experiences of sickle cell in schools in the UK. The OERs are available in a range of formats including PDF of the presentation slides . These resources are a ‘must’ for those involved in science and social science education, and for healthcare professionals working with young people with sickle cell.

Sickle cell and deaths in custody

We know that sickle cell disease is a vital part of the science curriculum in universities. But how can it inform the social science and humanities sections of the academy? One example is through my work on the relationship between sickle cell and sudden unexpected deaths of Black men in police or prison custody.

At De Montfort University, the work on sickle cell and deaths in custody (Dyson and Boswell, 2009) informs the youth and community development curriculum. One element of this is to encourage students who will work with young people in a multi-ethnic society to understand the ways in which White people enjoy cultural, material and symbolic resources, that, usually without any critical reflection on their part, they then regard as the natural order of things. The research work drawn upon illustrates this general principle in the case of sudden death of Black people in custody. The research shows how official accounts of sudden deaths of Black people in state custody draw upon two contradictory discourses. When a Black man dies in police or prison custody and is found to have sickle cell trait at autopsy (all people with sickle cell trait would show sickled cells at autopsy) the death is attributed not to violence, restraint, positional asphyxia, use of conductive electrical devices or pepper spray, but to “unexpected”, “rare”, “natural causes” that officers “could not be expected to know about”. Conversely, there are documented deaths in police and prison custody of people whom it is known have the full medical condition sickle cell anaemia, but whose requests for preventive or emergency treatment are systematically denied, leading to their deaths under police or prison jurisdiction.

Deaths in Custody Book Jacket

The lecture and discussion based on this research contributes to several of the learning outcomes for a module entitled “Black Perspectives”, which aims to: (1) Present a critical appreciation of the relationship between Black people and non-Black people; (2) Analyse a contemporary issue of significance to the Black Community, and (3) Reflect on individual learning during the module and explore how the module content and the group  work undertaken contributed to them working toward enhanced practice based on knowledge, experience, and skills.

This session contributes to the wider BA (Hons) Youth and Community Development programme aim of challenging taken-for-granted assumptions of students, in this case by exploring the complex ways that, even in death, the social experience of Black and White people is not the same.

Research References

Dyson, SM and Boswell, GR (2009) Sickle Cell and Deaths in Custody London: Whiting & Birch 

Blog Post by Professor Simon M Dyson

Unit for the Social Study of Thalassaemia and Sickle Cell,
De Montfort University