Sickle cell anaemia – Sickle Cell Open Education

To celebrate Global Sickle Cell Awareness Day on 19^th June, SCOOTER is releasing a number of high quality education materials on sickle cell and thalassaemia with the education of future scientists and future health professionals in mind. Today sees the release onto SCOOTER of the first wave of such social science resources. These comprise two series of lectures with narrations. They are available in multiple formats including podcasts and PDF files of the slides.

The first is a series of lectures on sickle cell and education, examining the challenges of young people with sickle cell disorder at school. All six lectures can be found here as narrated presentations or notes.

The lectures follow a series of publications of the following journal articles:

Dyson, SM; Atkin, K; Culley, LA; Dyson, SE; and Evans, H (2011) Sickle cell, habitual dyspositions and fragile dispositions: young people with sickle cell at school Sociology of Health and Illness 33 (3): 465-483 [ISSN: 0141-9889] http://onlinelibrary.wiley.com/doi/10.1111/j.1467-9566.2010.01301.x/full

Dyson, SM; Atkin, K; Culley, LA; Dyson, SE; Evans, H and Rowley, DT (2010) Disclosure and sickle cell disorder: a mixed methods study of the young person with sickle cell at school Social Science and Medicine 70 (12) 2036-2044. [ISSN: 0277-9536] http://dx.doi.org/10.1016/j.socscimed.2010.03.010

Dyson, SM; Abuateya, H; Atkin, K; Culley, LA; Dyson, SE; and Rowley, DT (2010) Reported school experiences of young people living with sickle cell disorder in England British Educational Research Journal 36 (1): 125-142 [ISSN 0141-1926] http://dx.doi.org/10.1080/01411920902878941

Dyson, SM; Abuateya, H; Atkin, K; Culley, LA; Dyson, SE; and Rowley, DT (2008) Local authorities and the education of young people with sickle cell disorders (SCD) in England International Studies in Sociology of Education 18 (1) 47-60. [ISSN 0962-1214] http://dx.doi.org/10.1080/09620210802196168

Dyson, SM; Atkin, K; Culley, LA and Dyson, SE (2007) The educational experiences of young people with sickle cell disorder: a commentary on existing literature. Disability and Society 22 (6): 581-594. [ISSN: 0968-7599] http://dx.doi.org/10.1080/09687590701560196

The second comprises three lectures around ante-natal screening for sickle cell/thalassaemia and the challenges of attempting to target that screening on the basis of an ethnic/family origins screening question, research that informed the development of the NHS Sickle Cell and Thalassaemia Programme Family Origins Questionnaire.

Narrated presentations and notes can be found on our resources pages. The research informing these lectures can be found in the following articles:

Dyson, SM; Chambers, K; Gawler, S; Hubbard, S; Jivanji, V; Sutton, F; and Squire, P (2007) Lessons for Intermediate and Low Prevalence Areas in England from the Ethnicity Questions and Antenatal Screening for Sickle Cell/Thalassaemia [EQUANS] Study. Diversity in Health and Social Care 4 (2): 123-35. [ISSN 1743-1913] http://www.ingentaconnect.com/content/rmp/dhsc/2007/00000004/00000002/art00006

Dyson, SM; Cochran, F; Culley, LA; Dyson, SE, Kennefick, A; Kirkham, M; Morris, P; Sutton, F; and Squire, P (2007) Observation and Interview Findings from the Ethnicity Questions and Antenatal Screening for Sickle Cell/Thalassaemia [EQUANS] Study. Critical Public Health 17 (1): 31-43. [ISSN 0958-1596] http://dx.doi.org/10.1080/09581590601045188

Dyson, SM; Culley, LA; Gill, C; Hubbard, S; Kennefick, A; Morris, P; Rees, D; Sutton, F; Squire, P (2006) Ethnicity Questions and Antenatal Screening for Sickle Cell/Thalassaemia [EQUANS] in England: A randomized controlled trial of two questionnaires. Ethnicity and Health 11 (2): 169-189. [ISSN 1355-7858] http://dx.doi.org/10.1080/13557850500460348

We would appreciate your feedback on these resources and whether you found them useful and how you might intend using them, either yourself as an interested member of the public, as an educator or as a student. Please complete our resource surveys included on each page.

Professor Simon Dyson, De Montfort University

2 Nov 2010

This year 2010 marks the 100^th anniversary of the publication that first described the medical condition Sickle Cell Anaemia. To coincide with this anniversary it gives me great pleasure to introduce SCOOTER, an open education project from De Montfort University, Leicester UK.

SCOOTER stands for “Sickle Cell Open – Online Topics and Educational Resources”. SCOOTER is funded by the UK Higher Education Funding Council for England (HEFCE) , and both the Higher Education Academy (HEA) and the Joint Information Systems Committee (JISC) are working in partnership to develop the HEFCE “Open Educational Resources” (OER) programme, supporting UK higher education institutions in sharing their teaching and learning resources freely online across the world.

Building on the work of a pilot which took place between April 2009 and March 2010, a second phase of projects and activities is now running until August 2011, of which SCOOTER is one of several projects. This phase will extend the range of materials openly available, and SCOOTER will produce educational resources on the topics of Sickle Cell Anaemia and Thalassemia, also known as Cooley’s disease in the US.

Sickle cell image — Christopher Roever, http://www.flickr.com/photos/55259882@N00/2721765425 CC BY-NC-SA

What will happen next?
I’m Dr Vivien Rolfe the Project Leader, and along with Professor Simon Dyson and Dr Mark Fowler, and a growing team of De Montfort University staff, over the course of the year we will be releasing onto this website educational materials including photographs, laboratory data, slide presentations, videos and animations. We will be explaining how to produce open content, and how to licence material for use, such as using the Creative Commons licences associated with the pictures above.

Would you like to be involved?
Do you have materials or ideas for a resource?

Do you want to follow the progress of the SCOOTER project?

Do you want to be involved in testing out new resources?

If the answer is YES, then we would be delighted if you could email us DMUSCOOTER@gmail.com and we will include you on our mailing list of already 200 researchers, health professionals, employers and education providers all working in the areas of Sickle Cell Anaemia and Thalassemia around the world.

Tag: Sickle cell anaemia

Sickle Cell Anaemia Open Education Project