More details to the background of the work in Sierra Leone can be found on a second blog post here. The SCOOTER project would like to reflect here our thanks to all of those mentioned in the guide who helped produced this vital adaptation.
We would like to thank the following for their work in producing this adaptation of the Guide to School Policy:
Parents, caregivers and young people with sickle cell, Sierra Leone Sickle Cell Disease Society Amelia Eva Gabba, Sierra Leone Sickle Cell Disease Society Tamba P. Kellie, Sierra Leone Grammar School Benson A. Sesay, Freetown Secondary School for Girls
Samuel O. Macauley, Milton Margai College of Education and Technology Samuel I. Bangura, Helen Keller International, Freetown Osman Kamara, Helen Keller International, Freetown Annie Sesay, Sierra Leone Sickle Cell Disease Society
Cassandra Leigh, Sierra Leone Sickle Cell Disease Society Iyamide Thomas, GT Consultancy and UK Sickle Cell Society Maria Berghs, De Montfort University, UK Students and staff at Sierra Leone Grammar School, Freetown Secondary School for Girls, and the Methodist Girls High School
The reason for this second edition is change to UK law with the introduction of the Children and Families Act of 2014. This requires schools to make provision for young people with conditions such as sickle cell disease, and the guide further supports this.
We hope this guide is useful and it continues to lead improvements in the way that young people with SCD are integrated into school.
The ‘Schools Guide‘ was the result of research by Professor Simon Dyson and colleagues, and assists teachers and policy makers in supporting children with sickle cell anaemia and thalassaemia in schools. The guide is one of this projects most popular open educational resources (OER), and through Simon’s hard work has been translated into several Nigerian languages, with others planned.
This is a lovely video outlining the work, and the bundle of resources contains downloadable slides and documents to support further understanding of this area.
These open educational resources are perhaps some of our most important. They are the result of a research project funded by the UK Economic & Social Research Council and conducted between De Montfort University, University of York and Loughborough University. The first report provides some essential background information to sickle cell disease, which is a complex condition with symptoms ranging from stroke, silent stroke, chronic pain and acute painful crises.
This research project explored how young people are treated in schools, and as a result, a help guide has been produced which many schools are now using and have adapted to provide support and better care of sickle suffers in their education setting.
These open educational resources incorporate a series of 4 narrated presentations, presented by Professor Simon Dyson of De Montfort University. They describe research exploring ethnicity questions and antenatal screening for sickle cell disease and thalassaemia. These are superb resources for any medical and healthcare students and professionals.